We received a petition asking:
“We the undersigned petition the Prime Minister to CREATE A FUND TO RESEARCH ‘EHLERS DANLOS’.”
Details of Petition:
“EHLERS DANLOS is a syndrome for which there is no known treatment. So there is no cure. It is an inherited disorder of collagen. The skin bruises easily and any wounds are difficult to heal leaving paper-thin scar tissue. The joints become loose and frequently dislocate leaving the sufferer in unbearable pain. Internal bleeding also occurs. I should like money put towards research into this debilitating disease.”
· Read the petition
· Petitions homepage
Read the Government’s response
The Government is determined to make the UK the best place in the world for health research, development and innovation and to invest its substantial health research budget in the best possible way.
Neither the Department’s National Institute for Health Research (NIHR) nor the Medical Research Council (MRC) ring fence funds for expenditure on particular topics: research proposals in all areas compete for the funding available. Both organisations welcome applications for support into any aspect of human health and these are subject to peer review and judged in open competition, with awards being made on the basis of the scientific quality of the proposals made.
The MRC is one of the main agencies through which the Government supports medical and clinical research. It is an independent body which receives its grant-in-aid from the Department for Innovation, Universities and Skills. The MRC is not currently funding research specifically into Ehlers-Danlos syndrome, although some research currently being undertaken may help develop our understanding of these conditions. Details of funding arrangements are available on the MRC website at www.mrc.ac.uk.
Implementation of the Government’s research strategy Best Research for Best Health is resulting in an expansion of the Department’s research programmes and in significant new funding opportunities for health research. These NIHR programmes support high quality research of relevance and in areas of high priority to patients and the NHS. Details, including the scope of the programmes and the arrangements for making applications for support from them, are available on the NIHR website at www.nihr.ac.uk. Again, funding awards are in all cases made after open, competitive, peer review.
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